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Penny's Fund holds The Belper Games annually for two reasons. Firstly to gather the people of Belper and surrounding areas in one place to have a good ols fashioned laugh at othher people making fools of themselves, and secondly to raise awareness and funds for three small and very deserving charities. We set out to create an event that brought the community together, regardless of age, gender, physical ability, etc.to enjoy a day of family friendly fun. We didn't realise at the time but the money raised in the meantime was an unexpected and very pleasant surprise.
Every penny raised at The Belper Games is split equally between the following three charities.
The Scleroderma Society was founded in 1982 to provide support for both people with scleroderma and their families. Doctors specialising in this field were aware that people with scleroderma often felt isolated and alone given the rarity of the condition, so the Society was established to provide support and information about scleroderma to anyone affected. Since its birth, the Society has developed considerably and continues to expand its activities, membership numbers and the services it offers. The Society is a UK registered charity and from its inception in 1982 until 2012, operated on an entirely voluntary basis by a team of dedicated volunteers and trustees. 2012 saw the appointment of the Society's first paid member of staff, brought onboard to direct the Society forward to fulfill its potential. Everyone involved in the Society cares deeply about raising awareness and research for this rare condition and supporting those diagnosed with it.
Services include a free helpline, an annual conference, a network of local groups across the UK, a members’ assistance fund, an online discussion forum, a popular quarterly newsletter and an extensive range of literature on scleroderma.
There is as yet no cure for scleroderma and the exact causes of the disease are still unknown. The Society, its volunteers and fundraisers, raise vital funds used for scientific and medical research into the causes and possible treatments for scleroderma.
The main aims of the Pulmonary Fibrosis Trust are to support people who are living with Pulmonary Fibrosis, a very debilitating and life-limiting illness. They also hope to raise awareness of the illness and in particular the challenges patients face on a daily basis. They provide online support groups, advice on everything from medication to symptoms and can also provide patients with a grant if they find themselves in finanical trouble becasuse of their illness.
Penny's Fund are the Pulmonary Fibrosis Trust's biggest single donator to date, thanks to the money raised at The Belper Games. They have also recently devised a scheme allowing PF patients to borrow an Oxygen Concentrator to be able to go away on holiday. So, where did their first donated concentrator come from? That woud be Penny's Fund.
'Ataxia' means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. Over 10,000 people in the UK have a form of ataxia. There is currently no cure but we are working to find one every day.
Ataxia UK aim to support everyone affected by ataxia; people with the condition, their families, carers and friends. They fund research into developing safe, effective treatments. The ultimate goal is to find a cure for the ataxias but in the meantime help people to live with ataxia by providing a range of services that are not available anywhere else.
It was formed in 1963 by a small group of people suffering with Fredreichs Ataxia and has grown steadily ever since, the charity would like to see Ataxia branches popping up all over the country and have more recently launched their 2020 Vision campaign -to find a cure for Ataxia by the year 2020.